A page created by a Juvenile Dermatomyositis survivor who now wants to help others.
Sunday, 13 July 2014
Joanne's article
In an earlier post I mentioned my friend Joanne who recently passed away. I thought I'd share a fantastic article that Joanne wrote a while back which also inspired my song about her.
Her article can be found at: http://www.mamamia.com.au/social/dont-dis-fashion-my-passion/
Cheers, LB.
Thursday, 10 July 2014
My boots
I highly recommend these Ascent boots. I've had lots of pairs over the years and they are great for someone like me that needs extra ankle support. They are comfy too and look kick-ass (literally)!
Sunday, 22 June 2014
This is a song I wrote dedicated to the memory of my friend Joanne who passed away recently. Joanne had JDM. More about Joanne later.
https://www.youtube.com/watch?v=Z2YQKg58a_M
https://www.youtube.com/watch?v=Z2YQKg58a_M
Tuesday, 17 June 2014
Thursday, 12 June 2014
Two JM survivors meet!
I've just come back from Brisbane where I met someone who also had Juvenile Dermatomyositis when she was little. Her name is Jo and she's very inspiring. She's in her early 20's now. This was the first time I had met another adult in person who had JDM as a child. I don't think it happens very often! We understand that we are both rare! We had a fantastic time exploring the city of Brisbane. I look forward to catching up with Jo again soon! :)
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