Hello Sunday Morning!

My boots

I highly recommend these Ascent boots. I've had lots of pairs over the years and they are great for someone like me that needs extra ankle support. They are comfy too and look kick-ass (literally)!

Here's me with a couple of my guitars. I'm holding "Leslie" my treasured Gibson Les Paul Standard.

This is a song I wrote dedicated to the memory of my friend Joanne who passed away recently.  Joanne had JDM. More about Joanne later. 

https://www.youtube.com/watch?v=Z2YQKg58a_M

Two JM survivors meet!

I've just come back from Brisbane where I met someone who also had Juvenile Dermatomyositis when she was little. Her name is Jo and she's very inspiring. She's in her early 20's now. This was the first time I had met another adult in person who had JDM as a child. I don't think it happens very often! We understand that we are both rare! We had a fantastic time exploring the city of Brisbane. I look forward to catching up with Jo again soon! :)

Mocktails!

As a JDM survivor, I don't drink alcohol. I do however love mocktails! Here is a picture of an amazing mocktail I had at the Radisson Blu Plaza hotel in Sydney the other evening. Delicious!