Here's me with a couple of my guitars. I'm holding "Leslie" my treasured Gibson Les Paul Standard.

This is a song I wrote dedicated to the memory of my friend Joanne who passed away recently.  Joanne had JDM. More about Joanne later. 

https://www.youtube.com/watch?v=Z2YQKg58a_M

Two JM survivors meet!

I've just come back from Brisbane where I met someone who also had Juvenile Dermatomyositis when she was little. Her name is Jo and she's very inspiring. She's in her early 20's now. This was the first time I had met another adult in person who had JDM as a child. I don't think it happens very often! We understand that we are both rare! We had a fantastic time exploring the city of Brisbane. I look forward to catching up with Jo again soon! :)

Mocktails!

As a JDM survivor, I don't drink alcohol. I do however love mocktails! Here is a picture of an amazing mocktail I had at the Radisson Blu Plaza hotel in Sydney the other evening. Delicious!

My cooking :)

Hey everyone. Well, it's only been about the past year or so that I've been cooking, in part due to my Juvenile Myositis. I found it difficult to get around a kitchen and having to juggle a few things at once. Anyhow, I've learnt to adapt and I'm enjoying my cooking. Here's a steak and veg dinner I made for myself the other night.

Happy New Year!

Wishing everyone a very happy 2014! Hope we are one year closer to finding cures for the forms of Juvenile Myositis. LB.