This is a song I wrote dedicated to the memory of my friend Joanne who passed away recently.  Joanne had JDM. More about Joanne later. 

https://www.youtube.com/watch?v=Z2YQKg58a_M

Two JM survivors meet!

I've just come back from Brisbane where I met someone who also had Juvenile Dermatomyositis when she was little. Her name is Jo and she's very inspiring. She's in her early 20's now. This was the first time I had met another adult in person who had JDM as a child. I don't think it happens very often! We understand that we are both rare! We had a fantastic time exploring the city of Brisbane. I look forward to catching up with Jo again soon! :)

Mocktails!

As a JDM survivor, I don't drink alcohol. I do however love mocktails! Here is a picture of an amazing mocktail I had at the Radisson Blu Plaza hotel in Sydney the other evening. Delicious!