Merry Christmas!

Wow! What a hectic few months it has been! With the new website and the news story and everything else we've been doing to promote awareness of Myositis. I wish everyone a fantastic Christmas and all the very best for 2015. Stay safe people. LB :)

News item on Myositis!

Recently, there was a news item on Myositis and the work that we are doing to help create awareness.
https://www.youtube.com/watch?v=JahQ5K2OzAQ

New website!

Please check out Myositis Association Australia's brand new website:  www.myositis.org.au

Never felt so good or as strong...

On a rainy old day in Darling Harbour in Sydney, Australia to celebrate those young adults who have had Juvenile Myositis. I've never felt so good or as strong. Foot is holding up well. Life is great!

Myositis Awareness Day. September 21, 2014.

Myositis Awareness Week!

Hi folks,

Just a reminder that next week (September 15 to 22) is Myositis Awareness Week.  For more details about events around Australia, visit myositis.org.au and click on events!
Cheers,
LB.

Myositis Awareness Week! September 15-22

An advertisement featured in New Idea magazine for Myositis Week :)

Chicken ala Lachy

Joanne's article

In an earlier post I mentioned my friend Joanne who recently passed away. I thought I'd share a fantastic article that Joanne wrote a while back which also inspired my song about her.
Her article can be found at:  http://www.mamamia.com.au/social/dont-dis-fashion-my-passion/
Cheers, LB.

Hello Sunday Morning!

My boots

I highly recommend these Ascent boots. I've had lots of pairs over the years and they are great for someone like me that needs extra ankle support. They are comfy too and look kick-ass (literally)!

Here's me with a couple of my guitars. I'm holding "Leslie" my treasured Gibson Les Paul Standard.

This is a song I wrote dedicated to the memory of my friend Joanne who passed away recently.  Joanne had JDM. More about Joanne later. 

https://www.youtube.com/watch?v=Z2YQKg58a_M

Two JM survivors meet!

I've just come back from Brisbane where I met someone who also had Juvenile Dermatomyositis when she was little. Her name is Jo and she's very inspiring. She's in her early 20's now. This was the first time I had met another adult in person who had JDM as a child. I don't think it happens very often! We understand that we are both rare! We had a fantastic time exploring the city of Brisbane. I look forward to catching up with Jo again soon! :)

Mocktails!

As a JDM survivor, I don't drink alcohol. I do however love mocktails! Here is a picture of an amazing mocktail I had at the Radisson Blu Plaza hotel in Sydney the other evening. Delicious!

My cooking :)

Hey everyone. Well, it's only been about the past year or so that I've been cooking, in part due to my Juvenile Myositis. I found it difficult to get around a kitchen and having to juggle a few things at once. Anyhow, I've learnt to adapt and I'm enjoying my cooking. Here's a steak and veg dinner I made for myself the other night.

Happy New Year!

Wishing everyone a very happy 2014! Hope we are one year closer to finding cures for the forms of Juvenile Myositis. LB.